Ok so I thought I should finally talk about what all that research lead me to believe what these spots are. Mastocytosis is a rare skin disease. Rare like most specialist haven't seen it rare. You maybe asking...what is it and why do you think this is what Max has. First I should say I hope this is not what Max has, but it isn't looking good for the home team.
Mastocytosis is a skin disorder that effects your skins Mast cell. If you want the details see this link or these links. Basically you have spots that are clusters of mast cells that when they get inflamed you have hives and an allergic reaction. Mast cell can be found all over your body. They can be found in you skin, liver, spleen, stomach, bone, and other places. The ones listed above are the most commonly effected. We are hoping that only Max's skin is effected and that it is only minimally effected. A mastocytosis reaction can be as bad as itchy skin to swelling of lips, eyes and airway. We will have to have an epi pen with us at all times just in case. We will also have to be very careful when he starts foods to see if he has a reaction. Heat, friction, and stress can also cause reactions. We just won't know what he reacts to until it happens and then we will have to adjust accordingly. There is no cure for Mastocytosis. There are medications that can help cope with daily life, but no cure. About 50% of cases go away by puberty, but the other cases usually have more systemic involvement. We are obviously hoping for the case that goes away by puberty.
More to come. I have had some divine intervention since coming up with this diagnosis.
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