Monday, January 30, 2012

More Research

Well I have done more research.  I have looked up more skin conditions than I can think of.  In every article they would name conditions and I would click on that and then look up the images to see if that is what Max had.  Image after image, article after article and nothing.  I couldn't find anything that looked like Max's spots.  How could I not be able to find anything that looked like it?  Then it happened I found a spot that looked like Max's.  I didn't want this spot to look like Max's.  I read and read and nothing sounded good about these spots.  These spots came with a rare disease that could send my precious baby boy into anaphylaxis at anytime.  I really don't want these to be Max's spots.  The more I read the more I believed that these are Max's spots, but I don't want to believe.  I took pictures of Max's spots and post it on a forum that I found in hopes that they would say no way this is it.  That didn't happen.  I got responses like welcome, that looks like it, and instructions on what to do.  I scratched a spot and immediately it turned into a hive which is a classic sign of this condition.  I am in shock.  I don't know what to say or do.  My world is spinning out of control and I don't know how to make it stop.  I am going to the doctor tomorrow with him to hand over the research I found and see what the pediatrician says.  Then he has an appointment with an allergist for April 30th.  I can't wait that long, but I have to wait until tomorrow to go into that.  I don't want to say what it is until I go to the appointment tomorrow.  Just know that it could change our life, but especially his.

I am having a hard time right now wondering how my beautiful little boy will be able to do everything in life.  You know those things that you dream of doing as a family.  Ours include playing outside, riding bikes, riding four wheelers, camping, snowboarding, swimming, just everything that families do.  Now I am not sure that it is going to be possible.  I still have hope, but it has been hard.

More to come.........

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