Monday, January 30, 2012

More Research

Well I have done more research.  I have looked up more skin conditions than I can think of.  In every article they would name conditions and I would click on that and then look up the images to see if that is what Max had.  Image after image, article after article and nothing.  I couldn't find anything that looked like Max's spots.  How could I not be able to find anything that looked like it?  Then it happened I found a spot that looked like Max's.  I didn't want this spot to look like Max's.  I read and read and nothing sounded good about these spots.  These spots came with a rare disease that could send my precious baby boy into anaphylaxis at anytime.  I really don't want these to be Max's spots.  The more I read the more I believed that these are Max's spots, but I don't want to believe.  I took pictures of Max's spots and post it on a forum that I found in hopes that they would say no way this is it.  That didn't happen.  I got responses like welcome, that looks like it, and instructions on what to do.  I scratched a spot and immediately it turned into a hive which is a classic sign of this condition.  I am in shock.  I don't know what to say or do.  My world is spinning out of control and I don't know how to make it stop.  I am going to the doctor tomorrow with him to hand over the research I found and see what the pediatrician says.  Then he has an appointment with an allergist for April 30th.  I can't wait that long, but I have to wait until tomorrow to go into that.  I don't want to say what it is until I go to the appointment tomorrow.  Just know that it could change our life, but especially his.

I am having a hard time right now wondering how my beautiful little boy will be able to do everything in life.  You know those things that you dream of doing as a family.  Ours include playing outside, riding bikes, riding four wheelers, camping, snowboarding, swimming, just everything that families do.  Now I am not sure that it is going to be possible.  I still have hope, but it has been hard.

More to come.........

Research

Well you know the saying if it is to good to be true it probably is.  I wish this wasn't the case especially since we are talking about my beautiful sweet little boy.  I went home and diligently researched Pustular Melanosis hoping that I was going to get to call YaYa and tell her they were right.

Pustular Melanosis happens at birth or it happens while pregnant.  You notice it at birth.  The spots will be pustular and very fragile or broken spots with a brown mark in the middle.  They break very easy and so you may never see a pustule, because they break during delivery.  When the spots break they may have a white circle of skin with a brown dot in the middle.  It kinda of looks like a freckle.  These spots slowly fade.  You should see improvement in 3 weeks and they will be gone in 3 months.  So basically you have to live with it for 3 months and then it is gone.  Not a bad thing right?  Sounds pretty good huh?

Well here is the problem with this diagnosis.  Max had only one or two spots at birth.  If this is supposed to have all the spots at birth than this is problem one.  Max does have pustules, but pustules have been there for at least 2 weeks.  The above mentioned pustules are suppose to be delicate and should pop upon contact.  Max's are on his neck and I have touched the on purpose and by accident and they are still there.  That is problem two.  The spots should have started with a white skin circle around them and not just brown spots.  Max has never had white skin circles.  That is problem three.  These should all be spots.  You know spots that are round.  Max has round spots and more oval like spots that has no defined edges.  That is problem four.  The last issue is these spots are suppose to be benign.  If you scratch one of Max's spots it turns red like a hive and then turns it into a blister.  This is problem five.

I don't know how this could be even close.  With five issues with this diagnosis I am going to go ahead and rule it out.  I would have been the best diagnosis I could have hoped for, but alas it was not to be.  I am sad for my boy.  The one who is having to live with these spots.

Pustular Melanosis

Well we had our doctors appointment and I got a great diagnosis.  They said it was Pustular Melanosis.  Barb Matthews looked at him and said I have no clue and went to get Dr. Lopez.  Dr. Lopez said that he has studied Pustular Melanosis and thinks it is that.  He went to go look at some books and they came back to say yep it was it.  Then Dr. Smith came in.  He had seen this rare skin condition before and in a flash he confirmed.  While it sounds bad Pustular Melanosis is a benign skin condition that will go away in about 3 months.  It will fade in as little as 3 weeks and requires no care or follow up.  I guess it is a rare skin condition and in the 20 plus years Barb has been practicing medicine she has never seen it.  I hopping this is it, but my mom and I have this feeling like things are matching up. I can't say for sure until I get home and research it.  I would love it to be this.  This would be the best outcome I could have imagined.

Stay Tuned for the research.............

Thursday, January 26, 2012

More Spots





Spots

Max has spots.  Well this isn't a new thing.  He has had some spots on his face and neck for awhile.  His spots are increasing.  They are on his front, back, and legs.  They have been slowing increasing and now they are growing in size.  The size and increase in number has made me worried.  I thought I could wait til his 2 month physical on Tuesday.  Well I did what I should have not done and googled the spots.  The internet can bring out the crazy mother in me I guess and it has.  Nothing I found about the spots were good.  I went to the peeps yesterday and Baba freaked me out even more.  She looked at the spots and said he needs to see a doctor.  Really freaked me out.  She said she had never seen anything like that.  Great now everything is running through my mind.  Have I missed something.  Why wasn't I worried before?  Have I put my son in jeopardy?  I called this morning and we have an appointment at 1:30 today.  We have to start at the pediatrician, but I have a feeling we will be making an appointment with a dermatologist.  Needless to say I hope I can get on her later and tell you that I was over reacting and the spots are nothing.  He will just need some cream and they will go away.

Big Girl Bed

My baby girl is growing up.   On Tuesday night she was trying to go to sleep in her crib and was very fussy.  This is very unusual for her.  She usually goes to bed very easy.  I went to check on her and she kept saying, "sleep in bed, sleep in bed."  Well what else was I to do, but put her in her bed right beside the crib.  I got her all set and put her in the bed.  We sang some songs and I left the room.  She fussed for no more than 5 minutes and went to bed.  She slept in it all night no problem.  I went yesterday and picked up a bed rail.  She really is in a big bed not a toddler bed and I didn't want her to fall out.  She sleeps wildly just like her Mama used to.  You will never find her in the same place she started.  She went to bed last night no problem in the big girl bed. She didn't fuss, she was happy and went to sleep.  My baby girl who isn't even two is now in a big girl bed.  It is kind of sad, but I am happy she knows what she wants and she made the change by herself.  She doesn't always do change so well, so I guess if it is on her terms changes is good.  The real test will come on Friday during nap time.  It is dark when she goes to bed and I don't think she is tempted to get out of bed.  This won't be the case during nap time.  I'm hoping that she is just tired and wants to go to bed, so we can start a good routine of staying in the bed.  She will stick to the routine when it is set in place, but given in once and you are hosed.  She knows then that she could possibly get away with it and will keep trying to get you to cave again.  I did hint to the strong will above.  

I am so proud of you big girl.  Now lets get this potty thing going!!!

Friday, January 20, 2012

Max Can See

Max's eyes are starting to see more.  You can watch him track objects and things around now.  He is smiling back at you.  I love his smile, but his eyes aren't bad either.  I hope they stay the deep blue that they are right now.  I wonder if this is the reason he has not been sleeping that well during the day.  He can see things going on around him and it is keeping him up.  Yesterday we had a bad afternoon, but that could have been, because of the Kids Exchange in the morning.  This morning he had a hard time going back to sleep until we got in the car to meet daddy.  He will start to dose off and then he is right back up and getting upset.  I wouldn't mind that he is up if he wasn't crying.  If I hold him he will stop, but I can't hold him all the time.  The bouncy seat only works for about 5 mins., the gym doesn't work, and the swing is hit or miss.  I will say that the swing does the best job at keeping him asleep when he finally goes.  He is sleeping great at night, so I guess I shouldn't complain.  I guess I am pushing the schedule and stuff before he is ready.  I am trying to prepare for me going back to work, but he just isn't ready.  We will give it a week or two and then we will have to get on it.  I just hope he can regulate the sleep during the day as he did such a great job doing it at night.  My Mama says stop pushing him, so I guess I will listen.

Kids Exchange

Wow am I tired.  I went to the Kids Exchange yesterday.  It was crazy and I went on sellers day.  It was just as busy as Friday morning.  There was more of a selection thought.  I do know that if I want outdoor play stuff I need to be in line at 8:30 for the doors to open at 9:00.  The line to get in was looooooong.  I know that this is the way we save so much money and my kids can have multiple outfits, but it is work to shop there.  Max and I got there at 9:00 and went in about 9:30 (Cheyenne had to feed Abbey) and we left at 1:00.  Max held up until we got in line.  I had only brought one bottle and he was done shopping.  He did a great job.  I don't blame him for being upset so was I.  We did get some great stuff.  We got an Activity Gym for $20, 14 outfits for Kenzie in the summer, and  20 outfits for Max for the spring and summer.  I really don't know what size he is going to be so I got 3-6 and 6-9 month outfits.  I also got some birthday presents for Kenzie.  I found a cute stroller and swing for her babies.  I am sure this is good for Max too, since he now has to fight Elmo and the babies for his accessories.  I also found some little people.  It should be a great birthday and I found a beautiful cake.  You will have to wait a month to see it thought.  It was worth it and I am sure we will be back in the summer.  I will probably just take off work that day and go with out children.  This will be easier on the children and the momma.

Sunday, January 15, 2012

Long Night

It sounds like a bad night, but it wasn't.  Thursday night I had one long night of sleep.  Yep, Max slept 7 hours.  I was freaked out when I woke up.  After making sure Max was ok and still breathing I relaxed a little and enjoyed the moment of just waking up having had a long nights sleep.  I need the catch up.  Thank you Max.  He hasn't slept that long since.  He did sleep 5 hours the next night.  I know it may not happen again for awhile, but I am happy that I got a catch up.
Update on dairy free diet.  Max seems to be less gassy.  I had a small about of dairy today.  Dunkin Donuts put cream in my coffee.  I couldn't pass it up.  I need a warm drink and I haven't had a coffee in awhile.  I am sure I messed up everything.  I will start over tomorrow and try to stay strong.  I really didn't think I loved dairy that much, but I do.  I think it might be an obsession actually I am sure it has turned in to that.  I have had a dip in my supply since I stopped the dairy.  I think the two are unrelated, but I am hopeful that it will pick back up.

Friday, January 13, 2012

Two Days Two Doctors Appointments

Monday was the first doctors appointment.  That was for the boy.  His eye was still gooey and he spitting up a lot, so we had a doctors appointment.  On the scale he went.  OMG he has gained almost 4 pounds.  He weights 11 pounds 6 ounces.  He is a growing boy that's for sure.  The rest of the doctors appointment went just as well.  The eye is not an infection.  He has a blocked tear duct and it should clear itself up in a month or so.  The reflux is just that.  The doctor said if he wasn't gaining weight or he was throwing up the whole bottle then he would treat it, since he wasn't doing either than treatment isn't necessary.  He also said that treatment isn't usually effective in babies, so just another reason not to do anything.  He did say that if it was something I was eating it would be milk.  He told me that if I wanted to find out I could stop eating or drinking dairy for 2 weeks.  If it was milk I would know by then.  I have started my dairy free diet and we will see how it goes.  I hope it is not a dairy problem as I love dairy, but if it helps the boy than it will be worth it.  All in all a good doctors appointment.  I kind of feel like one of those hypercondriact mothers.  I mean I had a feeling that the eye was a blocked duct and I had a feeling they would say that the spitting up was normal.  I probably should have not taken him.  Lets go with I wanted to know how much he weighted and I didn't want to wait another two weeks.

The second doctors appointment was for the Kenz and it wasn't as happy.  Mike brought her home from daycare and she sounded awful.  She was coughing and very hoarse.  She sounded like she was having trouble breathing.  Off we went to work to get her checked out.  Well she of course rallied when we got there and was climbing on chairs and talking a bunch.  She wasn't coughing.  I am sure everyone thought I was crazy when I said that she was sick.  When the doctor came in she pointed to the otoscope and said ears.  I promise that she has not been to the doctor that much.  Than the doctor washed her hands and we talked, so that finally Kenzie could get her wish and she could have her ears looked at.  First she tried to look in her mouth and she didn't understand, so the doctor looked in mine first.  Then she caught on, but now Mommy had to have everything checked along with Kenzie.  After the doctor looked in her ears she promptly announced Mommy ears.  When the doctor tried to get away with only looking in one of Mommy's ears, Kenzie corrected her and said, "Mommy's other ear."  Yes I have a very smart, but sweet little girl.  Well after everyone was check out nothing significant was found.  The doctor thinks the cough is causing the hoarseness.    We were given instructions to go home and use a humidifier.  That is just what we did.  Hopefully she will get better quickly.  I am glad it is not RSV again.   

Monday, January 9, 2012

New Words

Well since we had an update on the boy and his eating it wouldn't be fair to not update on the girl.  I picked her up from daycare on Thursday.  It was not the normal, so she cried when she saw me.  Needless to say she doesn't do change well.  Of course she calmed down and wouldn't let go of me.  It will be ok sweetie daddy will resume the pick up duties and not mess with your routine.  Ok that story did have a purpose I promise.  Christa and Rich kept going on and on about how much she is talking these days.  They are floored that she is starting to use sentences.  I have noticed that for a couple of weeks and didn't think anything of it.  I guess she is talking early.  This doesn't surprise me as she always wants to be the center of attention and talking gets her there.  I am very proud of her and her new accomplishments.  I love her more each day.  She is getting so big so fast.

Growing Boy

Well my blogging goal didn't happen last week.  This was in part due to the growing boy.  He decided it was time for a growth spurt.  Monday through Wednesday he ate almost every 1 hour and a half.  Needless to say it was all I could to keep up.  We made it through it and seem to be settling down now.  Hopefully we will be getting into a rhythm, so it will help to know when it is time to eat.  Max is really a good baby.  He has been getting fussy in the evening and I am not sure if it is do to the reflux/gas or if it is just him being fussy.  Hopefully it will change.  We went to the doctor and got some things to try, but that is for another post.  This week should be better there isn't another growth spurt for another 2 weeks.

Sunday, January 1, 2012

Happy New Year

Happy New Year!!!  One of my New Year's resolutions was to blog at least 3 times a week.  It is my hope that in 2013 I will be able to print this off and make a Morrison Year Book.  I hope that as we grow older we can all look back at the memories that we shared.  

2011 had a lot of first's.  Kenzie celebrated her first birthday in February.  Max was born in November.  What a wild ride it was.  I can't wait to see what 2012 has in store for us.  

We just got back from the mountains.  It was a great end to 2011.  Mike had the week between Christmas and New Year's off.  That was a nice treat to have the family hanging out together for a week.  We left on Thursday for the mountains.  We took Campie.  Thank you Stewart and Naomi for letting us borrow that.  It worked out great.  It also made packing light work.  We will see tomorrow if that goes for unpacking as well.  This week starts a New Year and a new season of life.  We now have two beautiful children and are in the process of finding our new normal our new rhythm.  We will get there.  

As for New Year's resolutions.  I have only made a few and I hope they are more like Life resolutions.  I want to do better with our money.  I would like to make memories with our money and not just waste it.  To do this we need to be careful with it.  I also want to be more purposeful with my life and actions.  I want to make plans and stick to them.  I feel like I am just walking aimlessly through life and I want that to stop.  Well that is it right now.  I didn't want to make resolutions that I would never be able to keep.  

Well 2013 here we come full force.  I hope there will be many more blessings in store for us this year.